It?s sad.
Generally ratio for this disease is 1:4millions.
So Out of 4 millions Child one would face it. And sadly he is the one.
It will be tough for him to live with it. Firstly Hope so He won't get any renal anomalies which is very likely with this disease.
It is because of Fetal Growth Retardation (when Fetus was in Mother's uterus) either due to less blood supply or due to nutrient defect.
Anyway if he will go to any Asian Countries or Africa then He can try for treatment with Steroids and GH.
It is illegal in US,Uk and everywhere so..
Hope for Best.
In fact there are more problems which he can get after being 13 or younger.
Like Dental Problems, Kidney Problems, Stature problem, even rupture of blood vessels in Brain also can occur which can lead to death.
It would not be so easy. There are so much problem except size like hormonal disbalance means He can get early puberty where his secondary sexual functions get activated even at the age of 8 or 9..